Summary now available for BRAIN workshop on the ethics of sharing human brain data

A new detailed summary is available for a workshop held in July on the ethics of sharing human brain data, including recaps from panel presentations from researchers, ethicists, and research participants.

The BRAIN Neuroethics Working Group (NEWG) recently organized the Workshop on Ethics of Sharing Individual Level Human Brain Data Collected in Biomedical Research. The workshop convened stakeholders from academia, government, industry, and nonprofit organizations, as well as research participant perspectives and advocates in a two-day hybrid event that took place on July 17 and July 18, 2023. The workshop goals were to explore meaningful ways to categorize human brain data by potential risks of data sharing and consider any resulting differences in how researchers should treat and use those data.  

A summary(pdf, 560 KB) of the event is now available, providing the meeting overview and summaries of each of the five panel sessions—each including individual presentations followed by a moderated discussion. The workshop included five panel sessions discussing:

1) Data that is collected and stored by neurotechnologies and the inferences to be drawn from these data.

2) Inferences to be drawn from data and their implications for data sharing.

3) The potential risks to communities.

4) The potential risk to individuals of sharing human brain data.

5) Research participants’ perspectives on sharing human brain data.

Each panel session included a moderated discussion that focused on specific questions posed by meeting facilitators.

The second part of the meeting included breakout group discussions on strategies around potential safeguards to mitigate data sharing risks.

To learn more about this event and the discussions around the ethics of sharing individual brain data, read the meeting summary(pdf, 560 KB) or watch the videocast recordings  (day 1, day 2).

Latest from The BRAIN Blog

The BRAIN Blog covers updates and announcements on BRAIN Initiative research, events, and news. 

Hear from BRAIN Initiative trainees, learn about new scientific advancements, and find out about recent funding opportunities by visiting The BRAIN Blog.

This site is protected by reCAPTCHA and the Google Privacy Policyand Terms of Serviceapply.
black and white image of people working on laptops at a counter height table on stools at the annual BRAIN meeting